A while back, the lovely Beth of Mermaid in Disguise wrote about Cute Cups for Crappy Hands. And crappy hands being a subject I know a lot about, I accidentally wrote an essay in the comments section…
So I thought it would be useful to share the information here as well.
What are the issues with EDS and drinking…
- you may not be able to swallow. thankfully i can but my sister can’t and I’m afraid I’m not best placed to advise on this one.
- you may not be able to lift a drinking vessel
- you may not be able to open a bottle with your hands or a sports cap with your teeth
- you may have a tendency to spill or drop drinks
Contigo Autoseal are my go to for hot drinks (the site is american but there are UK retailers, it’s just an easier way to see the whole range on their site). I’ve never had a spill and the button to open the mouth bit is fairly easy to press but not so easy it will spill in your bag. They’ve got a few designs so you can think about what will work best for your hands. And they come in a range of colours as well!
Note of caution: your drink will stay hot for hours. If you want to be able to drink it soon, add some cold water!
Hot Straws are also ace for when you’re out and about. They mean you can order a hot drink and not have to lift the cup, just pop in your straw and go. The straws also fit into most takeaway cups (through the little mouth bit) which is extra helpful.
Second note of caution: Using a regular straw with a hot drink is not recommended. There are risks around the chemicals used to make them which are then released when they get warm. Also increased risk of burning yourself.
I get through ridiculous amounts of squash in a day. Maybe 2 litres whilst I’m at work and 2 litres when I get home. Way above the recommended 2 litres per day. And I can’t make my own juice or fill up my own bottle. So I need a big bottle to get me through the time when there is no one here, which I wouldn’t be able to lift. My first thought was that I’d have to have millions of small drinks all lined up for me… But then, through the powers of the internet, I came across Hydrate for Health. And without wanting to seem dramatic, it has changed my life!
I can drink laying down; I just hook it into the walker I have by my bed or chair, clip or drape the end over another part of the walker and I have a litre of juice in my reach. I also have one one my desk at work. People only need to fill up my juice twice a day at work say instead of every hour and no spills. Pop it in your wheelchair bag and feed the tube round the side and you’ve got instant access to your drink whilst you’re in your chair!
As you can tell, I love it, and I think it’s probably a good moment to mention I am not on commission! I don’t receive anything from the products I recommend here, I’m just a satisfied customer.
Also Contingo Autoseal do juice bottles in a range of sizes and are ace. Mine is 400ml which makes it lighter than carrying a coke bottle etc and went all the way to Cambodia with me. It meant that whenever I was offered a (non fizzy) drink, either in restaurants or on the plane, I could pass over my bottle and not have to worry about plastic cups etc. They also come in a range of colours and if you venture into the children’s section there are also some cool patterns as well.
And not forgetting alcohol…
Safe Sip drink covers can be used on wine glasses and are easy to use and small enough to carry with you if you’re going out. I struggle with drinking from wine glasses so I drink wine from plastic beakers with a safe sip cover.
So that, folks, is how I manage to stay hydrated with EDS. Do you have any other tips or favourite products?